Latest Episodes

67. Patient Safety Stories: Sickle Cell Advocacy to Improve Healthcare Safety
Kevin Wake, CMR, CHW, MS, is a 56-year-old patient advocate living with sickle cell disease. After health complications forced him to retire early from...

66. Empowering Patients: Autoimmune Advocacy and Research
In this episode, Reggie Barnes, Director of Patient Partnership for the Autoimmune Registry, shares his personal journey of being diagnosed with a rare autoimmune...

65. Patient Safety Stories: Empowering Patient Advocacy Part 2
In part 2 of the podcast, Dorothy Winningham shares her journey from a patient care aide to a caregiver for family members, highlighting the...

64. Patient Safety Stories: Empowering Patient Advocacy Part 1
In this episode of the Patient Partner Innovation Community Podcast, host Desiree Bradley discusses patient safety with guest Dorothy Winningham, a patient advocate. Dorothy...

63. Patient Safety Stories: Risk Factors for Cardiovascular Disease in Women
In this episode, Dr. Lyn Behnke, shares her personal journey of misdiagnosis and subsequent heart attack, highlighting the importance of self-advocacy and symptom awareness,...

62. Help, Hope and Healing: A trusted community partner providing support to families
Kimberly Novod is the Executive Director and Cofounder of Saul’s Light. Kimberly and her husband Aaron’s first child Saul was born at twenty-eight weeks...