53. Uncovering Diethylstilbestrol (DES) Exposure with Karen Fernandes

Episode 53 April 02, 2022 00:25:51
53. Uncovering Diethylstilbestrol (DES) Exposure with Karen Fernandes
Patient Partner Innovation Community Podcast
53. Uncovering Diethylstilbestrol (DES) Exposure with Karen Fernandes

Apr 02 2022 | 00:25:51

/

Show Notes

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Karen Fernandes, president of AYR Consulting Group in Dallas, Texas, to discuss the prevalence and risks of DES exposure.

The story of Diethylstilbestrol (DES) began in 1938 when British physician and chemist Charles Dodds and his team of scientists made the first synthetic oral form of estrogen. While DES was used widely to prevent miscarriage and related complications in pregnant women, 1970s research has since linked DES exposure to a host of health conditions that affect generations.

Still, many are uninformed about DES, including health providers. Karen, who shares her insights as a DES daughter, nurse, and advocate, advises the DES-exposed or those concerned about DES exposure to ask providers questions and actively seek information related to DES. At the same time, providers must engage in an ongoing dialogue with patients to become familiarized with their lived experiences and address DES exposure.

Resources Mentioned in this Episode:

DES Info 

NIH website 

AYR Consulting Group

National Quality Forum

The Joint Commission

Other Episodes

Episode 0

November 25, 2020 00:31:17
Episode Cover

36. 2CERRIAS: The Pact To Act FAST Saved My Life with Patient Partner Nonyne Smith

Welcome to the Patient Partner Innovation Community Podcast. This podcast was created to inform patients, families and caregivers about important health transformation topics. 

Listen

Episode

July 28, 2022 00:35:50
Episode Cover

57. Creating an Inclusive Environment for People Living with Disabilities

Michelle Whitman and MaryLiz McNamara believe that disability is an asset. They are on a mission to build sustainably inclusive practices and experiences for...

Listen

Episode

February 27, 2022 00:18:46
Episode Cover

52. Federal Efforts to Uplift Asian American, Native Hawaiian, and Pacific Islander Communities during COVID-19 with Ignatius Bau

In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Ignatius Bau, Health Equity Consultant in San Fransisco, California,...

Listen